01/04/12

A Mum’s Point of View

My name is Jodi Parry. In March 2007 I married Matt and after 12 months of being married

we decided to try for a family. After a long 12 months we were finally pregnant.

In January 2009 we had our little boy Finlay.

In 2010 we made the decision to try for a second baby and make our family complete. I got pregnant very quick and because we sadly lost a baby before we had Finlay we decided to pay privately for a scan at 9 weeks. At the 9 week scan we sat anxiously waiting for the sonographer to tell us she could see a babies heartbeat, as matt held my hand his grip got tighter as it seemed to be taking her a while. The sonographer then confirmed she could see a heartbeat Matt squeezed my hand and I had shed a tear of relief but she hadn’t finished, she then told us she could see a second heartbeat!! “You’re pregnant with Twins”. At this point Matt and I were both crying.

On the 29 June 2011 Abigail and Isobel were born, 6 weeks premature but perfect. We were told pre birth that the girls would go immediately to the Neo natal ward so we were prepared as that is exactly what happened.

After 3 weeks of watching the girls get stronger and grow we were approached by a Dr, she asked for a chat in private. My heart sank and I began to cry knowing instantly that something was wrong! The Dr told us that she felt the girls were displaying signs of Down syndrome and although they didn’t have a lot of signs such as one line on the palm of their hands or the sandal gap between their toes she said she was on the fence and would like to do a blood test to confirm her thoughts. We obviously agreed to the test and that was carried out immediately. The next 72hrs waiting for the results were the longest of my life.

The results arrived, myself and Matt were taken to a room and sat down, the next thing we heard was “I’m sorry to tell you both Abigail and Isobel have Down syndrome”. At that point my world fell apart I was Devastated. I felt like someone had just ripped my heart out.

With wobbly legs and tears pouring down my face I walked into the room where my baby girls were sleeping exactly how I had left them 5 minutes previous, not knowing how I would now feel. As I looked at them both it seemed as though I loved them even more than before. The bond that I already had over the last few weeks had just got so much stronger.

I knew nothing at all about Down syndrome apart from that it was an extra chromosome. This meant nothing to me; I wanted to know what the future held now for my babies. Would they walk? Would they talk? Would they be cute?

I had never met anyone with Down syndrome other than walking past them in the street I suppose I had felt sorry for them but never taken the time to look into what kind of life a person with Down syndrome lived.

I went home and googled it. I was thrown into a world of meaningless words. I did however read of all the complications that are common with Down syndrome, Heart problems, hearing problems, Thyroid problems and the list went on. The following day I went to the Hospital and said I wanted all these tests doing, so we knew what we were dealing with.

We found that in the beginning a lot of medical staff were sugar coating things and this wasn’t we wanted. We wanted to know the facts .

The tests were done and Isobel had a small hole in her heart, Abigail was deaf and both girls had an underactive Thyroid. Now I knew what I was dealing with I could start to get on with our future as a family.

We found that in the beginning a lot of medical staff were sugar coating things and this wasn’t we wanted. We wanted to know the facts

When the girls came home it soon became very apparent that apart from a few extra appointments they was no difference to my little boy Finlay, it would maybe just take them a little longer to do things.