“June 29, 2011 is the day that changed our world. For my husband Matt and I it was the day our beautiful twin daughters Abigail and Isobel were born. Two weeks later a doctor told us he believed the girls had Down’s syndrome. Tests confirmed he was right. Nothing can prepare you for that. How do you put it into words? I’m not a wordsmith. I’m just an ordinary mum with three extraordinary children including my oldest child Finlay. I hope that by sharing our story it will help other people and our own family.
Twincess is a charitable trust that was set up by us – Matt and Jodi Parry after our twin daughters Abigail and Isobel were born with Down’s Syndrome on June 29, 2011.
It’s estimated that the odds of having identical twins with DS is around 2,000,000 to 1. It can feel very lonely to be the parents of children with DS. Although we received a lot of well-meaning advice about the condition from health professionals when our girls were born, what we wanted more than anything was to contact somebody who’d been on the same journey as we were about to embark on. This is why we set up Twincess.
Twincess is place where families of those with Down’s Syndrome can connect, share, support and celebrate! It is about providing frank and honest advice based on real, personal experience. There’s a lot of negativity around the condition with the focus often being around what children with Down’s Syndrome can’t do. Twincess is about highlighting what they can do.
Twincess is not judgmental. We’re there for you if you’re expecting, or have a child with DS and want to hear a parent’s perspective. As well as creating this website and informative leaflets, our campaign – which is backed by a network of trustees and supporters, holds frequent events to network and to celebrate the positives of Down’s Syndrome.
Down’s Syndrome is not an illness. It is nothing to be ashamed of, pitied or looked down upon – despite an extra chromosome, people with Down’s Syndrome are no different to anyone else. People with DS, and those around them, are very proud of who they are.
Our long-term goal is to change society’s misconceptions and help people see the ‘Ups and not the Down’s’ of the condition.
Jodi and Matt Parry